The Marfan Foundation

Port Washington, New York

About this Resource

Founded in 1981, The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions.

Together, We are Fighting for Victory.

We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected people.

We provide a supportive community for everyone affected by Marfan syndrome, Loeys-Dietz, VEDS, and related conditions.

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Working Hours

Monday 9-am-5-pm
Tuesday 9-am-5-pm
Wednesday 9-am-5-pm
Thursday 9-am-5-pm
Friday 9-am-5-pm
Saturday closed
Sunday closed

Occupancy

Data Not Available

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